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Steroid withdrawal June 1, 2006

Posted by spacemom in : Fun with Crohn's Disease , 1 comment so far

I am now watching the man I love go through the worst thing I have seen on him.

Steroid withdrawal.

This is pure hell on him. You see, Crohn’s patients are often given steroids to control the immune system. The patient has a part of the hormonal system in his body shut off. While this will allow the colon to heal, it also messes with the rest of the body.

He has been on mega doses of steroids since November. In January, he was down to half of the original dose, but suffering from some of the nastier side-effects.

We are weaning him from the drug, but the withdrawal symptoms are horrific. Starting at 4pm, daily, he has crippling abdominal pain. At night, he is breaking out in sweats and shaking. Hair loss, hair growth, pain in his legs. Mood swings. Anger and depression come from out of nowhere. He is good at not taking it out on the girls or I, but I see it.

The hope is that he is off the drug in August. I can’t wait. It is agony to watch him in so much pain. I hate Crohn’s. It is an evil disease and I can only hope that my girls are not pre-disposed to it.

Car update! June 1, 2006

Posted by spacemom in : Current Affairs , add a comment

Tuesday. The earliest I can get my car in is Tuesday.
Fuck

Ok- So Dr. Jay and I talked about this at lunch. We laid out our finances and decided how to fund the car.
We are buying my car in the next month. We are hoping there will be July 4th sales. Right now, I am doing my negotiation work and getting quotes from everywhere.

The thing is, I already spent money on my car this year. I have a budget of how much I want to spend on it. This year, the budget is $500. Well, that leaves $25 for the rest of the year. So the question is how much will it take to fix the air?

Sigh. I refuse to be bullied into buying the car on someone else’s terms. So, I am going to be patient. We now know the money situation. We will know the price of the car and I have many quotes requested at the moment. We will be able to do this and I will have my "new car smell" soon.

But I hate that Carl (my ford) couldn’t last until October for me….