The hope springs… March 15, 2007
Posted by spacemom in : Fun with Crohn's Disease , trackbackThe hope starts as a seed. After years, it seems like there is no hope left to be found. The pain, the medicines, the diagnostics. Family members seem ignorant of your pain. They have no clue. Little things they say cut like knives as you try to remind yourself that they just don’t get it.
One day, a doctor can give you a name for it. You cling to that, a diagnosis. But will that be enough to get to the end state? You start with the simple treatments. It should show signs of working in a few weeks. The theory seems sound. Someone always knows someone’s brother’s sister who had it work for them! But the first treatment fails.
And then the next one.
And the next.
As you proceed down the line, the procedures and drugs have worse side effects. More damage to your body. Higher risks of cancer and other things.
As the needle is placed in the arm, the thought goes through your mind, "is this worth it?"
The journey of infertility and the journey with Crohn’s are eerily similar.
Jay started r3micade 2 weeks ago. There is improvement. Not gone, oh no, the Crohn’s is not in remission, but there is less blood and far less pain in the evening. He can actually read stories to the girls with them on his lap without wincing in pain.
There is hope. The next transfusion is Monday. Each takes 3 hours and then he will have 3 weeks off this time.
This may actually work. Please please please, let this medication work…
Comments»
I hope it works!
I will keep Jay in my thoughts and prayers
I will keep Jay in my thoughts and prayers
Sigh. Fingers crossed. We aren’t dealing with Crohn’s but my sister is dealing with severe rheumatoid arthritis, so I understand a bit of your challenges. Always in search of relief. Sending you guys good thoughts and lots of hope.
Hoping with you.
Sending good thoughts to you both.
I am seding hope your way!