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A Crohn’s update July 26, 2007

Posted by spacemom in : Life...otherwise , 2 comments

Tuesday was busy. Jay also saw his doctor. We (the doctor, Jay and I) are not happy with the way the remicaid is working. So we are taking the next step. Methotrexate, aka the scary shit. The dose is high enough that he needs to inject it. He needs to take an injection class (although given the number of sub-q shots I gave myself to conceive Soleil, I think I could teach him).

We now need to be extra careful about conception. It must not be allowed to happen. Too dangerous for the baby.

 I hope this works. I really really really hate to see him in so much pain. And now to move up to a drug that is used in chemotherapy (his dose is higher than normal, lower than chemo)

This is scary shit, my friends. Scary shit

I turned 5 and all I got was a bruise from the doctor July 26, 2007

Posted by spacemom in : Kids , 1 comment so far

On Tuesday, Soleil had her 5 year appointment. I needed the paperwork for school and I wanted to get it done as soon after her 5th birthday as possible. When we got in, the nurse gave me paper work on three shots. I was surprised because I knew we were getting the chicken pox one, but that wasn’t in the paperwork. She said "Oh, well, let me get that"

Turns out, no, we did the OTHER shots last year and this year was the chicken pox shot. She did pretty well with the shot, and was a little teary, but I have seen her worse. (And NO, I am not going to get into a debate on shots. I don’t do the flu shot for the girls because of the thermisol, but I don’t quite buy the thermisol/autism connection and the girls’ grandfather had polio, their father had pertussis and both of those left some serious life long issues…)

Then came the CBC/Pb test. (CBC=complete blood count). The idiot phleb kept telling Soleil that it wouldn’t hurt. WTF? I am sorry, but getting a needle shoved in the crook of your arm HURTS. Not a ton, but it does hurt. So I told her that it hurts a little, less than the shot. The phleb kept saying "Oh it won’t hurt" Well, even while holding her arm straight, Soleil pulled away when the needle went in. She was crying for 10 minutes in the car. She now has a bruise about 1 inch long on her arm. We did explain that it was from pulling away, but come on, what person would lie to a kid about pain. That’s a great way to earn trust!

 She’s now 50% in height (as she has been since birth) and about 40% in weight. No worries. I also got the name of an allergist for her. I want her checked out for the fish allergy that she and I have. Right now, Jay treats his lox like a biohazard. He shouldn’t have to…