The new world…

Things are getting almost back to order in Casa de Space. Dr. Jay has stopped fevering, although he did go to his GI doctor’s office to get a liter of saline pumped in directly. He normally gets 1/2 liter with his medicine (it’s an IV infusion) and he said he normally has to pee like a racehorse after his infusion. Yesterday, he went several hours without, so he had been pretty dehydrated. Since his Crohn’s medication suppresses his immune system, fevers can be very dangerous to him. Basically, his body has less of a chance to fight off any viral infection. When he has a bacterial infection, he needs to take antibiotics, something he hates to do. A viral is completely different.

We were in constant contact with his GI doctor. He is one of the leading researchers in Crohn’s disease and he is very careful about the side effects of the medications. He had a list of items that we were to call him immediately for, including rash. Fortunately, Dr. Jay never got any worse than 100.7 and we think he is on the mend. He did lose 6 lbs.! Man, if only it were as easy as getting sick for a week! ;)

Bad segue:

I am very proud of myself lately. This is one of those "personal advancement" moments, actually, 2 of them. The first was a few weeks ago. My Girl Scout co-leader and I were planning our parent meeting. We came upon the issue of car seats. I admit, I don’t find car seats and boosters useful after a certain point. I find it a case of too much law, not enough statistics. Most of the studies are done on kids in car seats versus kids not in car seats. That latter category includes kids without seat belts too. Also, a seat belt works properly when it falls properly. In my car, it falls on both kids properly in the back, but I still have them both in car seats. I do let my kids ride in the front, with the car seat, because our airbags turn off and the seat belt falls over their hip bones and on the shoulder properly. I base my decision on physics.

The Massachusetts Law is pretty simple. In a booster until 8 years old OR 57 inches tall. Soleil and one other girl are the young ones in our troop. They turn 8 over the summer. I was planning to ask who wants their child still in a booster. My co-leader wanted to ask who doesn’t need to be in a booster.

 After going back and forth on it, she did point out that she didn’t understand why I was so passionate about this. That made me stop. The truth is, I am passionate about it because I worry about keeping our kids too protected. I worry about the world saying a 19 year old drinking is a kid and a 17 year old who commits a violent crime is an adult. We place our kids in tiny boxes and then expect them to be able to handle the world.

BUT, that’s my grief. I don’t need to place that on other people.  My co-leader is protective of her kids, and she has good reasons. Her daughter survived a very nasty accident involving a tree branch hitting her head. You never want to hear the words "neurosurgeon" and "child" together. She and the other parents in the troop have every right to choose how they want their kids to use the safety seats. Even if her daughter never had that accident, she still has every right to keep her kids in car seats past the legal age. I agreed with her to place it in the situation that we will place a child in a booster unless the parent says otherwise.

I am very proud of myself for stopping and saying "It’s my issue. If I feel other parents are over protective, that is not for me to change. I can do the things I feel are right for my kids and they can do the things that are right for their kids." It sounds simple, but when you think of how we all criticize other parents, I am pretty proud of myself for letting this go.

 The second thing happened yesterday. Over the weekend, we had a spacecraft emergency. The spacecraft put itself in a safe position (at 11 at night because it never does this in the middle of a work day). While reviewing the telemetry from the spacecraft, it turns out that we happened to start communicating with the spacecraft AS it was going through its safing actions. I was confused on one item and emailed my team. When I got the answer back, I felt like an ass for asking. I got an email yesterday from my supervisor that I have trouble communicating with. He wanted me to review the safing actions.

I was furious. Okay, I made a mistake. So what? I then took a deep breath. I reread the email. This time? I was calm. We haven’t had a safing action in almost 2 years. I had forgotten something. It’s good to go back over the information. It’s not that he was chiding me, I was doing that to myself and channeling my anger at myself as coming from him. I was able to stop, recognize this and move on.

Yea me!

So that’s the update from the Spacefamily. We got haircuts for the girls this weekend, donations actually. I hope to have 5 minutes to download the photos later. They look so cool with short hair. Soleil donated 10-12 inches and Luna about 6 (We donate to Wigs for Kids). I am not sure they can use Luna’s but, dang, she needed to lose some hair!

I can’t do this much longer…

I know, I am not allowed to complain. I need to be upbeat, get everything done and be the person who can do it all.

But I can’t.

Dr. Jay has been ill since Thursday. He’s running a low grade fever. He isn’t supposed to get fevers. tell that to his body. He is sick and tired. I have been doing all of the activities with the girls. I am very tired and worn. I have little patience. I need sleep. But that isn’t happening.

I know I can’t complain. I am supposed to just do. But right now, I need to close my eyes and rest

No Capes! No Capes! *

* From the Incredibles


I am on the verge of a mini break down. Just a mini one. THERE ARE TOO MANY THINGS TO DO IN ONE DAY.

Seriously, how do people survive this?

So far this is my week:

  1. Monday was an off day, spent the entire morning with girls outside/at neighbors to keep them out of Jay’s hair so he could relax.
  2. Sunday night? Luna requested to go in panties at night. And peed three times over night. Yeah!
  3. Tuesday, back to work (yea!) and take Jay to his infusion and to get Luna back at daycare and Soleil back at school after the break.
  4. Wednesday, look at the week and realize Jay needs to take Luna to the doc to do an ear check, go to pick up Soleil’s RIGHT Boot and return the LEFT boot that we had to take at the play space Sunday when someone took her right boot by mistake. And get the kids to temple. Oh and write a phase 2 proposal for XMM. And on Friday I am walking the school with Soleil (DON’T ASK), and going to her doctor to discuss anger management (an upcoming protected post) and then work
  5. Have I mentioned that I am also working on two Girl Scout volunteer awards projects?
  6. And I just set up a community service project for my Brownies? (we’re making valentine’s day cards for people in the hospital)
  7. And I was just assigned a fun job at work on the radiation belt ingress and egress (YES! It is fun, but alot of work)

How do other moms DO this? Are we really expected to be supermoms? Seriously?

How do people handle all of this?

 

Can I go back to bed?

Sorry for the hiatus in the depression series. Jay spiked a 101.6 fever on Sunday. Now, for most people, no biggie, but he is on meds right now that prevent his body from fighting infection and 101 was the trigger to call the doctor. He saw the doctor yesterday and was given an antibiotic and a large round of blood tests.

I’ve been handling to kids mostly, got them out to Horton (loved it, but Vlad (not the bunny) was scary to Luna). We played, got Soleil to her Girl Scout meeting (which I didn’t have to go to! Yeah!) and generally got things going.

Sorry this is short, but I have a bit of code at work that is driving me mad! Oh wait, I think I know, I need a copy constructor in my class! Yes! That must be it!

If my last sentence made no sense, just move along! 

Why yes! I am awake!

Yes, it is 12:41Am, and I am awake!

Jay’s been ill today. I am getting very worried. The drug that is REALLY helping him is a major immuno-suppressant. He was running a fever of 99.1 on Thursday and I made him email his doctor. His doctor said not to worry until 100.5… I am still worried. He is asleep next to me (yes, I’m in bed, watching the Red Sox) Today’s been a whirlwind of activity including a PTO Fund raiser that took most of the day, making the whole family run down to Sommerville MA so I could get my medicine and then watching "James and the Giant Peach". Very very excited because Luna made it through the movie with only one running away! Yippee!

Tomorrow, Jay has softball practice. I am hoping he goes easy, so I am taking the girls to see "Horton Hears a Who!" I hope this movie is acceptable for kids who are 3y9m, because if Luna runs out on me, I am so going to lose it!

Good night! 

Only Child…

Last night, we went to Bugaboo Creek Steak House for dinner with a friend. The girls (and Soleil’s friend R) enjoyed dinner. And then, Soleil went in their car and went home with them for a sleepover!

Luna was very happy at first. She was excited to be an only child. She loved the idea. Until bedtime. Then she whined and cried for her sister. She didn’t want to be an only. She wanted her sister!

On the other hand, Soleil was asleep by 10:20! We’re going over for brunch once Jay wakes up*. This should be fun. It is odd to watch your baby grow into a child. Not a toddler or preschooler, but a real KID. With a real sleepover.

 

Wow, I must be getting old! But damn, if it ain’t fun!


*Jay is fighting a cold. Given that I can’t let him get a fever (he’d have to be hospitalized due to the meds he is on) I want to let him sleep as long as possible. And he was sleeping through the alarm, so I am just going to let him sleep!

And then she lost it…

Me or Soleil? I am not sure which one of us is going to go first!

She had a great day until 4:50pm. We went to our old town to put in her passport application. Note to parents. BOTH parents and the child have to be present to apply for a passport. Sigh. The post office was too busy (ie, only 1 person was there). So we went about 50 yards to the Town Hall to the Town Clerk. We finished that, got lollipops from the nice town clerk who assured us that it would take 4-6 weeks (I hope!).

We dropped Soleil at Kids’ Club for the day and then took Luna to DayCare. Got Jay some Boston Kremes (long story, but we’re having some Crohn’s weight loss issues now that he is off the steroids) and came home to get some work done. In the afternoon, we reversed directions. I went to get Luna, he started dinner and got Soleil.

When Jay walked in, the woman at the desk suddenly yelled, "Bring Soleil out!" He was concerned. Turns out, the poor kiddo was on someone’s lap, turned for a hug and fell into the train table. She has a large bruise under her right eye. I am hoping it won’t turn into a full shiner.  We had the incident report all typed out and ready to go. Sigh…

I believe that this fall caused her to go CRAZY. When she didn’t get her way at book time, she LOST it. Her book went flying across the room. Stomps, yelling of "FINE!" and other teenage actions. I was so close to losing it myself, but I used my calm voice and talked her down.

I know, in one corner of my mind, that this is normal. At 5-6, a child is starting to get more external influences in their life. They learn new techniques and coping skills, some good and some bad. But DAMN, it drives me nuts when she does this.

She is now asleep and hopefully in for the night.

May she have restful dreams…

Luna- Ha! She’s a whole other post! 

things you aren’t ready to hear

Scene: Last night, Jay and I are doing dishes:

Soleil yells from down the hallway "I’m PREGNANT!"

Luna "YEAH! YOU’RE HAVING A BABY LION"

Jay "I really am NOT ready to hear this!"

Soleil walks in the kitchen with Simba (from the Lion King) stuck under her shirt. "I’m not really pregnant."

Good to know, girl…good to know 


While away, Soleil proceeded to avoid panties. I explained that now that we are 5, we need to keep our vulvas private, especially from boys and men. "Why, mom? Is it because they want a vulva too? But they have a penis. And penises are POWERFUL! They squirt pee!"

Great. She’s already getting the power plays in the sexually charged world.


When asked where Daddy was Luna replied "Probably the potty. Daddy has a stomach sick and he poops alot. We have to give him privacy." I guess that’s a good way to describe Crohn’s…

 

Many topics…

First, I am back. We had a great time at the wedding. I will post photos of the flower girls when I get a chance.

Second, the depression is still here, but maybe now that we are settling into a new fall routine, I can get my groove back. Many thanks to those who asked about me.

Third, Today was the Official First Day Of School for Soleil. We went yesterday for a 45 minute orientation, but today is her first day on the bus and going to the after school program. Granted, this week is just half days, but she is a Kindergartner!

Fourth, Luna slept with out a pacifier last night! First time since she was born! She traded her pacifiers for Ariel Polly Pocket with Eric… Amazing what the love of those DAMN DISNEY princesses will do!

Fifth, Jay is doing better with the methatrexatemexthatrexate. Although it is leading to hair loss, he is feeling mostly better. Not in remission. But better.

Sixth, I need to get caught up with EVERYTHING from work to house to laundry. More later!