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Can I go back to bed? April 1, 2008

Posted by spacemom in : Depression, Dr. Jay, Fun with Crohn's Disease , 2 comments

Sorry for the hiatus in the depression series. Jay spiked a 101.6 fever on Sunday. Now, for most people, no biggie, but he is on meds right now that prevent his body from fighting infection and 101 was the trigger to call the doctor. He saw the doctor yesterday and was given an antibiotic and a large round of blood tests.

I’ve been handling to kids mostly, got them out to Horton (loved it, but Vlad (not the bunny) was scary to Luna). We played, got Soleil to her Girl Scout meeting (which I didn’t have to go to! Yeah!) and generally got things going.

Sorry this is short, but I have a bit of code at work that is driving me mad! Oh wait, I think I know, I need a copy constructor in my class! Yes! That must be it!

If my last sentence made no sense, just move along! 

Why yes! I am awake! March 29, 2008

Posted by spacemom in : Current Affairs, Fun with Crohn's Disease , 3 comments

Yes, it is 12:41Am, and I am awake!

Jay’s been ill today. I am getting very worried. The drug that is REALLY helping him is a major immuno-suppressant. He was running a fever of 99.1 on Thursday and I made him email his doctor. His doctor said not to worry until 100.5… I am still worried. He is asleep next to me (yes, I’m in bed, watching the Red Sox) Today’s been a whirlwind of activity including a PTO Fund raiser that took most of the day, making the whole family run down to Sommerville MA so I could get my medicine and then watching "James and the Giant Peach". Very very excited because Luna made it through the movie with only one running away! Yippee!

Tomorrow, Jay has softball practice. I am hoping he goes easy, so I am taking the girls to see "Horton Hears a Who!" I hope this movie is acceptable for kids who are 3y9m, because if Luna runs out on me, I am so going to lose it!

Good night! 

Only Child… January 20, 2008

Posted by spacemom in : Kids, Fun with Crohn's Disease , add a comment

Last night, we went to Bugaboo Creek Steak House for dinner with a friend. The girls (and Soleil’s friend R) enjoyed dinner. And then, Soleil went in their car and went home with them for a sleepover!

Luna was very happy at first. She was excited to be an only child. She loved the idea. Until bedtime. Then she whined and cried for her sister. She didn’t want to be an only. She wanted her sister!

On the other hand, Soleil was asleep by 10:20! We’re going over for brunch once Jay wakes up*. This should be fun. It is odd to watch your baby grow into a child. Not a toddler or preschooler, but a real KID. With a real sleepover.

 

Wow, I must be getting old! But damn, if it ain’t fun!

*Jay is fighting a cold. Given that I can’t let him get a fever (he’d have to be hospitalized due to the meds he is on) I want to let him sleep as long as possible. And he was sleeping through the alarm, so I am just going to let him sleep!

Protected: Further worries and things that go bump in the night December 27, 2007

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And then she lost it… December 26, 2007

Posted by spacemom in : Kids, Fun with Crohn's Disease , 1 comment so far

Me or Soleil? I am not sure which one of us is going to go first!

She had a great day until 4:50pm. We went to our old town to put in her passport application. Note to parents. BOTH parents and the child have to be present to apply for a passport. Sigh. The post office was too busy (ie, only 1 person was there). So we went about 50 yards to the Town Hall to the Town Clerk. We finished that, got lollipops from the nice town clerk who assured us that it would take 4-6 weeks (I hope!).

We dropped Soleil at Kids’ Club for the day and then took Luna to DayCare. Got Jay some Boston Kremes (long story, but we’re having some Crohn’s weight loss issues now that he is off the steroids) and came home to get some work done. In the afternoon, we reversed directions. I went to get Luna, he started dinner and got Soleil.

When Jay walked in, the woman at the desk suddenly yelled, "Bring Soleil out!" He was concerned. Turns out, the poor kiddo was on someone’s lap, turned for a hug and fell into the train table. She has a large bruise under her right eye. I am hoping it won’t turn into a full shiner.  We had the incident report all typed out and ready to go. Sigh…

I believe that this fall caused her to go CRAZY. When she didn’t get her way at book time, she LOST it. Her book went flying across the room. Stomps, yelling of "FINE!" and other teenage actions. I was so close to losing it myself, but I used my calm voice and talked her down.

I know, in one corner of my mind, that this is normal. At 5-6, a child is starting to get more external influences in their life. They learn new techniques and coping skills, some good and some bad. But DAMN, it drives me nuts when she does this.

She is now asleep and hopefully in for the night.

May she have restful dreams…

Luna- Ha! She’s a whole other post! 

things you aren’t ready to hear November 29, 2007

Posted by spacemom in : Kids, Fun with Crohn's Disease , 1 comment so far

Scene: Last night, Jay and I are doing dishes:

Soleil yells from down the hallway "I’m PREGNANT!"

Luna "YEAH! YOU’RE HAVING A BABY LION"

Jay "I really am NOT ready to hear this!"

Soleil walks in the kitchen with Simba (from the Lion King) stuck under her shirt. "I’m not really pregnant."

Good to know, girl…good to know 

While away, Soleil proceeded to avoid panties. I explained that now that we are 5, we need to keep our vulvas private, especially from boys and men. "Why, mom? Is it because they want a vulva too? But they have a penis. And penises are POWERFUL! They squirt pee!"

Great. She’s already getting the power plays in the sexually charged world.

When asked where Daddy was Luna replied "Probably the potty. Daddy has a stomach sick and he poops alot. We have to give him privacy." I guess that’s a good way to describe Crohn’s…

 

Many topics… September 5, 2007

Posted by spacemom in : Kids, Depression, Dr. Jay, Fun with Crohn's Disease , 3 comments

First, I am back. We had a great time at the wedding. I will post photos of the flower girls when I get a chance.

Second, the depression is still here, but maybe now that we are settling into a new fall routine, I can get my groove back. Many thanks to those who asked about me.

Third, Today was the Official First Day Of School for Soleil. We went yesterday for a 45 minute orientation, but today is her first day on the bus and going to the after school program. Granted, this week is just half days, but she is a Kindergartner!

Fourth, Luna slept with out a pacifier last night! First time since she was born! She traded her pacifiers for Ariel Polly Pocket with Eric… Amazing what the love of those DAMN DISNEY princesses will do!

Fifth, Jay is doing better with the methatrexatemexthatrexate. Although it is leading to hair loss, he is feeling mostly better. Not in remission. But better.

Sixth, I need to get caught up with EVERYTHING from work to house to laundry. More later! 

 

Update on the Space life June 14, 2007

Posted by spacemom in : Life...otherwise, Kids, Fun with Crohn's Disease, I dream of sleep , 2 comments

It’s been fairly busy as of late.

First, a quick update on Jay: The rash is still there and he is having other skin issues. However, he is not writhing in pain at night from the crohn’s. We (ie, the doctors, Jay and I) are invetsigating switching to a similar drug, that involves weekly home injections. We will see….

On me: I have a depression update, but I may password protect that.
I am pissed at the state of health care right now. My insurence decided to change my thyroid medicine to a generic. It’s cheaper. Well, most people are okay with that. I am not. I have a huge issue with medicines. I react very quickly and strangely. I took the new medication for 4 days with blinding headaches, rapid heart rate, shakes and exhaustion. I just got the original medicine last night. The pharmacy refused to fill it because “You just got a refill” Dumb-asses, this resets it back to the original. My doctor agreed that I needed the original medicine.

Soleil: Has slept in the TOP BUNK for the past 4 nights! So far, so good! She’s doing a great job with that. The girls are so close that we decided to get a bunk bed and they can share a night room. When Soleil is comfortable enough with the top, we will invite Luna to sleep in the bottom bunk.

Luna: My baby is growing. She is hitting that stage where she’s starting to see that tantrums are not working. This means when she throws one, they are BIG. But they are getting less often. That’s good news.

So that’s a minor update. I have a ton of software to work on for command load reviews and I am loving my macBook. Now to run some astro code on that!

—-BTW Does anyone have a favorite WYSIWYG editor with spell check for wordpress?

A short series of thoughts May 11, 2007

Posted by spacemom in : Life...otherwise, Dr. Jay, Fun with Crohn's Disease, Home wreckers, Go Team Go Team Go Team, In A Family Way , 4 comments

In Bullet form?

When Life gets you down… May 1, 2007

Posted by spacemom in : Fun with Crohn's Disease, Home wreckers, Go Team Go Team Go Team, Ghost in the (sewing)Machine , add a comment

You know what you do? You think of people who have worse lives than you. Such as the people who created the world’s largest coconut orchestra…

Actually, things have not been that bad. The weekend was rough, we had to set some limits on listening, but yesterday, we did a great walk in the evening.

Did you have that? We used to take long walks in the evening. Just Jay and I. Hand in hand we would stroll along and enjoy life. Then the two psycho aliens kids came along and we stopped. Yesterday, Soleil rode her bike (with training wheels) and Luna rode in our last stroller bundled with blankets while we took a walk. It was nice and relaxing except for the time where Soleil almost flipped into the path of an oncoming car. She is learning how to control her bike. How to steer straight and watch for dangers on the road. It was really nice to be out there again.

Slowly, slowly we find a new norm…


Jay’s been fighting a terrible cough. We aren’t sure if this is just a normal cold and the remicaid has suppressed his immune system to the point where a cold is killing him, or just a very bad cold. I am worried because he is waking at night to hack up a lung…

I started Soleil’s dress this weekend. She chose a purple fabric. A really purple fabric. I like it! But I forgot to buy a zipper, so I need to go do that. Thanks for all of the advice people gave on sewing. I am learning, slowly.

Tonight, we watch my team again. We lost in double overtime to the NY Rangers on Sunday… Let’s hope for a win tonight so we can head back to Buffalo with a 3-1 lead.


And finally, we are at long last getting the walls painted. The house we bought in 2003 had the world’s most awful wallpaper. We have removed most of it, but the stairwell and the kitchen/dining room have not been touched. Yesterday I got someone to arrange for an estimate, and I picked up three samples. We’ve decided what we want and where, so now it is an issue of getting it done! It will do us good to get some more color in the house. And to get rid of that nasty paper!

I think I have more posts of thoughtful merit, but not right now! I have some code to write!