A warm body

Before I start this post, I want to point out that I am in a pretty bad place right now. The funk that started before Cleveland has settled in for the long run. This is tough and I am not a happy camper at all right now. But that’s for another day.


Most mornings, I wake with a small body curled next to me. Often it is two small bodies.

Soleil will wake up around 7am to climb into bed with us. Sometimes, she had nightmares and will come in without me noticing her there. I will turn over at night and feel the gentle breath on my skin and wake up to see her perfect face there. Luna comes in almost every morning at 5:30-6. I think the birds wake her. She comes to my side of the bed since Daddy puts her back in her bed. I am too lazy to get up and do that. I hold out an arm for her to use to help her climb into our bed. Then she curls against me, back to back and sleeps.

I wake to the sound of multiple breathing patterns. Luna is loud. She snores and I often wonder if she has some problem with her throat. Soleil is quiet. Their breath is no longer the swell smell of baby breath, but I still enjoy it.

Once, we would be awoken multiple times a night by a screaming child. Four consecutive hours of sleep was a luxury. Now we have traded the wake ups for night time visitors.

And to be honest, those are two warm bodies I do not mind at all.

 

Quiet day

Sorry no real posts today. I did some web design at work and then went home early and took a 2 hour nap. I am lucky. The building we work in was built in the 1930s. You know, when women were "weak" once a month. So all of the women’s rooms have beds in them (I kid you NOT). I am planning on taking in a pillow tomorrow. I’ll take 1 hour naps at work during the day to help with the sleep. I spoke to my bosses and they both suggest using my sick time to get better. I agree.

In addition to the mono, I have anemia caused by the mono. My liver enzymes are off as well, a slight case of hepatitis. Apparently, 90% of mono sufferers develop hepatitis while the mono runs its course.

I am angry and frustrated.

Then we receive news that Lauren is having some bone marrow trouble. She is getting a few pints of Cleveland’s finest in a transfusion this week. I feel stupid for being upset that I am sick when Lauren is fighting cancer. She’s got one more chemo round left. She might have to miss the fall semester of her sophomore year. This bites. 

Lastly, Jay started the methatrexate yesterday. Turns out it is an intramuscular injection. Ick… 

A lack of Sleep

For almost a week now, I haven’t been sleeping. That’s not true. I sleep, but it takes hours to fall asleep.

I don’t understand it.

 

At first, I thought it was because I hurt my back. And the back hurt my legs. And I was aware of my legs at night.

I tried benedryl. I tried alcohol (which worked, but I don’t drink much). I tried a new age Zen music (at least then I was awake and not panicky)

I don’t know why this is happening, but I have a flight at 5am tomorrow. I have to get myself up at 3 and out by 3:30. And how do I do this when I can’t fall asleep until 1-2am?

I wonder if my body is finally caught up on sleep and is okay with 6 hours a night now. I can’t imagine that is it as I am exhausted now and it is 3:30pm.

I hope I figure this out soon. Not sleeping is tough 

Sigh… 

Frozen

I am suffering a batch of insomnia right now. Last night, I stopped tangling the sheets alone, and went to the kitchen around 1:50am. I poured a bowl of cereal and went to get the book I am reading. As I reached for the milk, I saw the M family photo on our fridge.

In the photo, Corey and Becky are standing behind a counter. Their son, Sam* and daughter Emma* are sitting on the counter. Emma is 7 months old, a shock of blonde hair capping her beautiful head. Sam is 2 years older than his sister, and looks like Corey already. Becky is still carrying her pregnancy weight, and this is not the best photo of her. Corey has a short haircut and is smiling.

This photo was taken in December, 1999. A family photo to send around for Christmas. I was visiting them in early January. I called around Christmas to wish everybody a good time.

On January 6, 2000, Corey was killed at Fort Bliss in El Paso.

The days after were a blur. The shock of everything. Becky was making him a birthday present when the soliders came to tell her. How Sam kept asking her was she okay. Her in-laws coming. The feuding over the burial. The complete lack of respect for her wishes. The luck that Corey had R-C put on his dogtags so Becky could at least have the funeral in her church, not his family’s.

The sadness of having to leave her with her parents. Having to leave everything in El Paso to move back to Buffalo. How to raise two small children alone? How to deal with the pain? The family? The greif?

I told Becky that I didn’t know how she did it. She replied the only sensible answer: She didn’t have a choice. She could either die too, or be there for the kids. I realize now what a stupid thing it was to say to her.

They never found his wedding ring for her.

At the funeral, they had a 7 gun salute. Half the shells were given to her, wrapped in the flag that covered his casket. The remaining 3 were given to his parents.

It was a closed casket. I think only Becky’s mom looked while in El Paso. She could do that. She had the stomach to handle these things. I nearly vomited getting the call.

Time moved forward, it always does. I went on trips with Jay, continued to work, continued to try to have a child. Becky used the life insurence to buy a car and a house. At least a mortgage would not be held over her.

She was pressured by his family to sue the railroad company. The family of the other solider killed did sue. She refused. It doesn’t matter what I thought at the time, I was there to support her choice.

I visited as often as I could. I’ve watched Emma and Sam grow up. They came out here when Soleil was a baby. Sam and Becky came out in 2005. We visit every Christmas.

Yet for Corey, time is frozen. He is always 29, less than a month from 30. He is always wearing that smile. He is always a few more exams from applying to officer school. He is always in Texas, away from the hockey that he loved.

All of this came to my thoughts last night as I looked at this photo on our fridge.

 

* I changed the kids names.

Update on the Space life

It’s been fairly busy as of late.

First, a quick update on Jay: The rash is still there and he is having other skin issues. However, he is not writhing in pain at night from the crohn’s. We (ie, the doctors, Jay and I) are invetsigating switching to a similar drug, that involves weekly home injections. We will see….

On me: I have a depression update, but I may password protect that.
I am pissed at the state of health care right now. My insurence decided to change my thyroid medicine to a generic. It’s cheaper. Well, most people are okay with that. I am not. I have a huge issue with medicines. I react very quickly and strangely. I took the new medication for 4 days with blinding headaches, rapid heart rate, shakes and exhaustion. I just got the original medicine last night. The pharmacy refused to fill it because “You just got a refill” Dumb-asses, this resets it back to the original. My doctor agreed that I needed the original medicine.

Soleil: Has slept in the TOP BUNK for the past 4 nights! So far, so good! She’s doing a great job with that. The girls are so close that we decided to get a bunk bed and they can share a night room. When Soleil is comfortable enough with the top, we will invite Luna to sleep in the bottom bunk.

Luna: My baby is growing. She is hitting that stage where she’s starting to see that tantrums are not working. This means when she throws one, they are BIG. But they are getting less often. That’s good news.

So that’s a minor update. I have a ton of software to work on for command load reviews and I am loving my macBook. Now to run some astro code on that!

—-BTW Does anyone have a favorite WYSIWYG editor with spell check for wordpress?

5 am–update 3:38pm–3:49pm–9:07pm

Yes, Soleil woke at 5am. And then Luna did.

I am exhausted. How the hell do they have so much energy? All of the polly pocket princesses are on the floor of Luna’s room. There is a chess matching going on ( white appears to be winning) and Diego books everywhere.

Oy! I am going to have a long day!

Update- Day is not getting better. Low point? Perhaps it was the point when Soleil dropped her chocolate milk in Panera. Or when Luna had an accident outside of the restroom at the Hardware store when I was ordering a new toilet? No, I think the last one was irony, not a low point. Nothing like a toddler sobbing “I’m sorry” while you are assuring her it was okay while lysoling someone else’s floor.

Update2: Or perhaps the low point is Jay telling me that he may be allergic to the remicaid. Today is his last dose as he started a rash today during his infusion. Oh hell.. This was the only thing even giving him some relief… I want to cry…

Update 3: Jay’s rash is…well..unknown. Maybe a withdrawal symptom? Maybe an allergy? Maybe psoriasis? G-d only knows. The thing I do know is that he is talking to his dad and not curled up on the couch in pain like the last few nights.

Soleil lost her bedtime TV by refusing to listen and deliberately defying me after I explained the situation. This lead to the following conversation at bedtime:

me: Honey, you need to pee before bed.
Soleil: NO!
me: I really want you to go to the potty before bed.
Soleil: YOU CAN’T MAKE ME!!
me: No, I can’t, but if you wake up over night and have an accident on your bed, that is your fault, not mine.
Soleil: (eyes wide and nostrils flaring) FINE! I’m using YOUR potty! (and turns and runs to the master bathroom)

Hello? is she having her 5th birthday next month or her 15th? I refused to allow her to drag me into a power struggle. I am way too tired and scared for Jay…
Sigh….

Tomorrow will be better….

Sleep

You may have noticed a dearth of posts about sleep. Yes, there is light at the end of the tunnel, Virgina! For Luna, is now sleeping from 9pm to 6:45am on a regular basis (excepting the fact that we ran out of diapers and she’s been sleeping in her "feel and learn" pull-ups and for some reason is waking in the middle of the night when she pees. Hmm, maybe some diapers are in order?)

Soleil comes into our room and climbs into bed about 4 times a week. But she falls asleep very quickly and we can move her back to her room at our leisure.

We have been fighting sleep issues since Soleil was born. We had multiple wake ups for 2+ years, then Luna for 1.5 more years. We have had issues with naps, and issues with bedtimes. We are finally at a point where we can almost consistently get 8 hours of sleep ourselves. And we are almost done with the ten million pieces of assvice of how to get our kids to sleep!

And this is nice. I am glad that we are finally sleeping.

Life in the fast lane

Oy! Some days, the dragon wins. Today is not one of those days, but it started like it.

First, I have to fix the photos above. For some reason, they came out funny and three photos are on top of each other…

Let’s see, last night, I went to work out at the gym. Jay and I came to an agreement that I could work out on Monday nights and Saturday mornings (and I am going to add Thursday nights in there too). When I came home, Soleil was at the door to the garage screaming, reaching for me. Oh shit, what is this? I picked her up and Jay told me that her ear was bothering her. After 20 minutes of ear piercing screams that had MY ears hurting, I got the on-call doctor to tell me that giving her Tylenol and motrin 3 hours apart overnight was the best thing and to get her in to get checked in  the morning. Sure enough, she has an ear infection and will start the evil, yet needed antibiotics tonight.

I really hate the over use of antibiotics, on the other hand, I can’t stand to see my girl in pain. It’s a double edged sword…

Jay and I had a long time deciding what to do last night. You see, there are 4 people on my operations team at work. And this is my duty week. I am on call 24/7 this week. I have a 9am meeting every workday and I have to review the spacecraft command load to make sure it is safe for our instrument and that we are completing the science we want. I also need to be available to deal with any changes to the parameters for an observation and to build new commanding if needed.  We have an agreement that I will take any child to the doctor/dentist/ stay home if needed UNLESS it is my duty week. So, Jay should have taken her to the doctor. Except he had a meeting this morning at 10 that he had to be at. Sigh. I was able to do some work at home last night and get things worked out so I was ok to get her into the doctor. It is hard when life and work collide.

We have a busy week. Jay’s mother is visiting on Thursday-Monday. Yes! We have a sitter for a weekend night! :) Nance is very happy! Hopefully the girls will be as excited and let mommy get some stuff done this weekend!

Jay is not doing as well with his new Crohn’s management as we had hoped. The doctor is also not thrilled. The next plan may involve a very nasty drug, given via IV, once a month. I don’t like the sound of it, nor the side effects. I am trying hard not to put my head in the sand on this one, but for the moment, I am hiding from this.
Not even Dr. Google is allowed to talk to me about this until we decide this is to be done.

I was sad to see that ChicagoMom  is still struggling with her depression. It bites. It really does. If you visit her site, go give her a cyber hug, will you? I am starting to get a better handle on it by taking the cymbalta early, but… It comes and goes. This weekend I was with a group of wonderful people and I had a long day with Soleil and I was just apologizing for living by the end of the day. It was terrible. Everyone kept saying they understood, but MAN was it hard….

Finally, a big group cheer for Johnny, who finally got his referral for his son! Congrats Johnny and S and M!!!!

Little Things that make Me smile

I started a post on Sunday. About how life sucked and how I sucked and all sorts of depressing shit.
I never posted it. I stopped and realized that we have managed to reduce the absolute negative attack of depression to 2 days this month.  Yesterday, I was much better. Today, good, but still stressed. I see my doctor today.

So instead of being all bitchy and depressive, I am going to touch on the brighter things of this weekend:

  • Luna coming up and humping my leg while Soleil grabbed the other. Jay was right there, but both girls wanted me, Mommy.
  • Soleil telling me "I have a present for you" then turning around, looking for something, finding a hairbrush on a table she then hands it to me and says "A present, just because I love you"
  • Asking Luna to try potty and tripping over the potty chair in the master bath because Soleil wanted her to use the "mommydaddy bathroom"
  • Having friends over who have a 2 .5 and a 6 month old and reminding myself that we are SO past that stage.
  • Being able to chat to a new friend on the phone while the kids played.
  • Watching the rain
  • Taking the girls ice skating for the first time and seeing that they can actually sort of do it!
  • Watching hockey on an HD broadcast on our new TV
  • Going to the Cheesecake Factory and getting takeout just so a friend and I could eat it at Starbucks.
  • Sleeping in until 9:15 on Sunday
  • Watching the girls play as if they are on a ship. Then laughing when I realize they are on the Carpathia, rescuing people from the Titanic.
  • Inhaling COLD air in January and wondering when the snow will fly
  • Getting my stupid PAP done for another year
  • Thinking about Hawai’i in another few months.
  • Thinking about Florida in another few weeks!
  • Having Luna kiss me and hug me tight and whisper "I love you mommy" in my ear
  • Knowing that this damned depression does pass…